25
Jan
16

Putting things into perspective

At 3:40 in the morning on Tuesday, January 19, I was awoken by my husband calling to me from the floor. As I sat up and leaned over to respond, he got to his hands and knees and crawled over to the bed and put his head on the mattress, but seemed to be completely unable to come any further.

As he kept saying “I need to tell Sheri” (I’m Sheri) “that I fell on the floor,” over and over again, I worried that he had had a stroke.

Repeated attempts to get him to come up on to the bed failed, so I went out into the hall and called to some friends who had come in from out of town the night before to see if they could come help me. We managed to get him up on the bed, and he was able to look at me and talk and squeeze both of my hands, so I thought maybe it wasn’t a stroke after all. Then he told me that he needed to tell Sheri that he had had chest pains and while trying to take his pulse he had apparently fainted. There was blood on his lip and a split in the skin over his eyebrow, so it seemed clear that he had hit the floor pretty hard.

I called 911, gave him an aspirin per instructions, unlocked the door and turned on the porch light, and went back to sit with him and wait for the EMTs, during which time I made repeated calls (unanswered) to his cardiologist who is also a good friend.

Four people arrived — first, two firemen, who asked him some questions, had him smile and stick out his tongue (no stroke); then two EMTs with an ambulance who took a pulse, and ran a quick EKG which showed a mild arrhythmia but not enough to “require” a trip to the ER, although the EMT recommended it.

Our friends and I thought that would be a good idea, and he agreed, which kind of convinced me this was pretty serious, as he would generally resist such an idea, so off he went in the ambulance, and I followed with one of the friends in our car. The other stayed home with Second Son, StepSon, and Only Daughter.

We spent almost 6 hours in the ER while they monitored his heart rate, and took periodic blood tests for Troponin (sp?), the enzyme thrown off by the heart if there is a heart attack (all negative). He was then sent to the cardiac observation unit, so that they could do one more Troponin test and monitor things for the day.

He was allowed to move around, so we walked up and down the halls for a while, him walking his IV pole. His manner of speaking still seemed different from usual — not as different as in the first few minutes, when he didn’t seem to realize to whom he was talking, but still different — more monotone, at a slightly higher pitch. We observed people of many ages in beds, a young man in what seemed to be a 50% body cast walking (?) down the hall with crutches and family flanking him on all sides. We nodded to the resident who had come and asked him some questions already, heard rumors of the cardiologist’s impending arrival.

Six hours later (now 4:30 p.m.) the attending cardiologist, the resident, two students and nurse appeared in his room, where the doctor reported many lengthy conversations with Husband’s cardiologist friend and between the doctors at the (very excellent) hospital.

Many theories presented themselves, none with clearly obvious affirmative answers. Husband had an abnormal stress test in the fall, but only at the highest pulse rate they were willing to push him to. Perhaps a plaque had broken loose and blocked an artery, but there were no indications of heart attack and he had no physical symptoms of blockage — his pulse was good, his color was good, he wasn’t short of breath, the pain had been in his chest only, not radiating to chin, arms, shoulders, etc. Perhaps the pain had caused a vaso-vagal response, but there had been no moments of dizziness or nausea — he was conscious taking his pulse, then he was coming to on the floor. The attending’s theory was that there had been an arrhythmia, which might have caused fainting. The arrhythmia might be caused by some partial blockages, and the only way to know that for sure was to go to heart catheterization, so that was where we were going. Now.

So we went.

Thirty minutes later he’s in the cath lab, shaved and mildly sedated, and I’m in the waiting room.

For two hours.

And for one of them basically alone, as the routine procedures were over for the day, so the status board was shut off, then the woman at the desk went home. So I sat. And knitted. And texted people back who were checking in. And tried to decide if I had time to go get something to eat (had four bites of breakfast 8 hours earlier or so). And waited.

Granted, midway I did get a report from the nurse that they had placed one stent and were “trying” (?!?) to place another.

Finally he was on his way back. I went back into the pre-procedure room and waited; I could hear him talking to the nurse as they came down the hall, and he actually sounded much more like himself. When he saw me, though, there were a few tears in his eyes, and he reported on the surreal nature of undergoing a procedure on your heart while you can hear them talking about what they’re doing and what they’re going to do next and shouting orders to assistants and you can feel twinges deep within your chest as they run wires and place stents. Four were placed — one in one artery that had a 90% occlusion; three in a very complicated and zig-zaggy artery that had an 80% occlusion. There were pictures, of the before-and-after persuasion, which were fascinating; and a third artery with 70% occlusion that they left as is — he had already been in the procedure for two hours, and many doctors don’t seem to feel that stenting a 70% occlusion is a good idea.

Of course he was then admitted. As the procedure requires them to employ blood thinners, the cuts on his lip and eyebrow reopened and bled, and bled, and bled; the small contusion on his eyebrow swelled to golf-ball size proportions, and the lovely purple eye-shadow on his upper lid became a full-blown black eye. I sat by his bedside and dabbed blood from his lip for hours, and he tried valiantly to keep an ice pack on his very painfully swollen brow.

We slept, eventually, I on a marginally comfortable couch-like structure that “opens” up into a “bed.” By 6:45 a.m. the room was full of nurses changing over their shifts, and then the cardiologist and a couple different students appeared, with news that he would need a stress test, and if he “failed” they would have to go in and stent the one vessel they didn’t get to and if he passed he could go home.

And then the stress test was delayed until the next day because he had already taken his meds.

And then, a few hours later, the stress test was reinstated, because the meds don’t matter, but what? He’s eaten some of his lunch? Stop eating! Fine, a few bites don’t matter.

Stress test, wait wait wait wait wait wait wait wait wait wait wait wait wait wait wait wait wait you can go home.

No, we don’t have results, but we have discharge orders.

So he’s home.

And then nobody sleeps. You think sleeping in a hospital is hard, but then you go home and realize that now nobody’s monitoring your heart, and there aren’t nurses a call-button away — just your wife, who slept through the whole thing in the first place until you called for her from the floor.

Not very reassuring.

And now for the point of this whole post.

Some questions.

Why do we get to live where access to this kind of medical care is available to us, just minutes from our house?

What happens to people who don’t live in such an area?

We were in the emergency room for 6 hours, and he was being treated the entire time. The friend who had come with me is from New York city, and pointed out that in NY we might not even have been seen yet.

He had state-of-the art care, within minutes of when it was needed. He needed a heart cath — there’s a doctor there ready to do the procedure within minutes. He needs a stress test, the woman with the wheel chair was in his room before I could even text his family. He needs blood thinners and a lifetime of anti-coagulants that cost $387 a month and will cost us $20 with our prescription insurance and THEY DID THIS PROCEDURE THROUGH HIS WRIST WITHOUT ANESTHESIA — he won’t even have a scar.

How can we maintain our normal work loads to continue to meet our financial obligations without losing sight of the fact that nobody gets out of this alive? That time is our most precious commodity and every single one of us might have a hell of a lot less of it than we think? That yes, life is full of frustrations and disappointments but joy and meaning and relationships are priceless so that we can should must try to overlook/let go of the former and treasure the latter?

Our friends were visiting at what might have been a most inopportune time — in the middle of a work week, while Husband suffers a cardiac “event.” But a snowstorm on the east coast meant that they were “stranded” here for a couple of days at the end of the visit as well, and we enjoyed delicious meals and great bottles of wine together, and laughed so hard last night that our stomachs hurt.

Yesterday I took our friends to a garden center with indoor greenhouses and sculptures and art installations. We walked around and took pictures of tulips and daffodils and cacti, with steamed-up windows and snow visible through them in an interesting seasonal juxtaposition. I watched a half-frozen waterfall through a window that flows to a Japanese garden and studied pieces by Rodin and Degas and Calder. I felt as I do when listening to Mozart — happiness and sadness at exactly the same time.

It all goes so much faster than most of us expect, maybe even than we would want. (I always say that the only way to slow time down is to just be really bored all the time; remember how long Sundays were when you were a child?)

We still don’t even know if the treatment resolved the cause of the problem. We might not ever know. So we live now with a lot of gratitude, and a little more apprehension, a little more care, a little more joy.

IMG_3499 IMG_3501 IMG_3504 IMG_3509 IMG_3511 IMG_3512 IMG_3513 IMG_3514 IMG_3515 IMG_3517 IMG_3518 IMG_3519 IMG_3520 IMG_3521 IMG_3523

 

Sorry the pictures aren’t better – I took them with my phone. Loved the colors though.

 

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5 Responses to “Putting things into perspective”


  1. 1 Margy Rydzynski
    January 25, 2016 at 6:59 pm

    Wow, what a night! I’m glad the hubby is on the mend. Lovely flowers, too.

  2. January 25, 2016 at 8:33 pm

    What a shock! This must have been very worrying for you – the surprise of the condition, the circumstances in which it was manifest, the lack of a definitive explanation for all the signs & symptoms, etc. And further, the story’s not finished yet. You’re sounding fairly calm now, but I’m sure there’s an underlying level of concern which wasn’t there before. Not only about Husband… doesn’t this make you wonder how much your own cardiac arteries are occluded?

    I have had exactly the same thoughts as you in relation to access to good medical treatment. A friend of mine who lives in my street had a heart attack (at home) the other day, and our proximity to emergency treatment and remediation (stents) probably saved his life, or at the very least improved his outcome. Even being a few suburbs further away could have made a significant difference, let alone being in a different health care system.

  3. January 30, 2016 at 11:42 pm

    So sorry to here this, I know it is so stressful. My mom went in to have stents put in and they said she couldn’t have them that she would need by-pass surgery! What a fright that was. So she had it and did so well. The next year she had cataract surgery. The next year she was diagnosed with pancreatic cancer. She had the best doctors in the best hospital in a town two hours away. She lived six months longer than she was expected. It was still not enough time for me. Now I just think about how fast life goes. How we have to find a way to live it to the fullest whatever that really means. Be nicer, kinder, gentler. Forgive more, understand more. Be more empathetic, more generous. I don’t know.

    And I think about living in a third world country in the smallest little village with no doctors. The horribleness of it. I shudder to think of it.

    Wishing you both peace. Linda

    • January 31, 2016 at 6:40 pm

      We feel very lucky, and the unfairness of what is available to us and is not to so many — but this is true of much of our lives. Was able to resign this week from a job that had been making me miserable for years — another luxury many cannot afford.

      Three words: gratitude, gratitude, gratitude.

      Trying to teach Only Daughter how “rich” we actually are, as she goes from our humble ranch to school with people living in McMansions and 14 year olds with iPhone 6S’s and families who go on three vacations a year.


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